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UPDATE: 5/22/09
Hello to all my Fibro Friends
well, my Doctor has finally turned me into a junky!....He laughed jokingly to me a few weeks ago at my visit....I said GReat just what I want to be at age 52!!!!
I take the smallest dose of vicodin and klonopin 3 times a day.....and though they are narcotics...this is the best i have felt in years....I did mention the amytryptalen to him and he said in his practice it has not worked.
But LO and Behold..... the FDA just approved a new drug aimed at Fibro its called Savalla ....so here i am being all excided that there is this new drug and I got one of the very 1st sample packs from my doc.....it wasnt even in the Drug store yet!
Well, anyhow, I took my 1st tiny little blue pill yesterday...thinking to myself, this is the wonder drug ive been looking for.....well about an hour after taking this wonder drug i had the most violent vomitting episodes in my entire life!!!!!
I went to see the Doc yesterday and told him I threw the rest of the samples into the trash!
No way would I subject myself to that again!
So, I guess I will remain a junky LOL (just kidding on that part)
i was so hoping the new drug would work....oh well...at least i still breathe
Wishing you all good as can be health
Hope
I have been asked about the origin of Krisderas Angels well here is where it began
Krisdera is my online name that I have used for at least 15 years
When I 1st went into AOL / Yahoo Chat I needed a name that was of me and belonged to no one else....
So, I have 3 daughters
the youngest being Kristen
the middle being DeAnna
the oldest being Rachel
So one afternoon I sat and played with their names
KRIS(ten)DE(anna)RA(chel)
Lo and behold I called myself krisdera
a combination of the beginning of all 3 of my daughters names
So then when I needed a nursery name of course I had to use Krisdera
** Update**
The docs cant find the cause for my imflammation. So, the have given me drugs to help cope with the Lupus and Fibromyalgia. Which for the most part are making a difference. I still have many bad days but there are more good ones being added which is a very wonderful thing!
Hi My name is Hope Tencher
I am the artist behind Krisderas Angels.
I discovered the art of reborning almost a year ago while doing a search.
I came across pictures of what I thought were babies. Much to my surprise I discovered that they were in fact dolls.
Well I dove right into the art.....then I took sick with Lupus. I am still fighting the illness. I just have to say that reborning has kept me sane though it all.
All I think about is my dolls and what I can do to improve myself.
My Lupus wont leave me alone, Im losing the fine motor skills in my hands, which interferes with my babies and that makes me sad.
I love reborning and I dont know what I would do if I couldnt do them anymore. Each baby that I reborn is like saying Lupus you havent got me beat yet!
I hope you enjoy my babies as much as I do. I fall in love with each and everyone of them
Take care and remain safe
Hope
03/06/09
Well now besides Lupus I have fibromyalgia. I will in the near future have to have carpal tunnel surgery on both wrists. They cant find what is causing the inflammation and to prevent futher damage to the nerves in my fingers and hands they suggest the surgery. I will not be able to make my bracelets for my reborns. (well not now anyhow) perhaps I will in the future. It takes me so very long to string the beads, My fingers dont work right when picking up little things. It is so very frustrating to me. Hopefully with the surgery it wont get any worse.
Im looking forward to the Spring! I love it so.
Thank you all for your continued support of my reborns.
Hugs
Hope
Lupus Update:
After a year of testing, my doctor seems to think that it may not even be my Lupus....but something called Whipples instead....."sighs"
Have to schedule more tests!
Not Whipples (sighs)
Jan 08
Update
Hi
Well the trip to Boston to see a Lupus Specialist was a success! (at least Im hoping so) The new Doc took one look at my hands and knew exactly which med to put me on!!! Imagine that?
She said, even though I dont have joint pain, it appears that I have the inflammation that goes along with RA, She said its rare for Lupus to cause this but its not unheard of and that inflammation can manifest itself in different ways in different people .She said this new med (its been around for 30yrs)(but its new to me) should help me and after Im on the full dose and if Im doing well, I should be able to be weened off of the steroids!!! That will be a blessing. I keep thinking of the Hump my reg Doc said I will get on my back from taking the steroids for so long.......I have to take folic acid every day to counter act the side effects of the new meds. and I will have to have blood work every 6 weeks to check liver fuctions but other then that I should see an improvment she even said that I may get the feeling back in my fingers over time.
Hugs
Hope | 
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